ELAROS respects personal privacy and is committed to protecting personal data and fully complying with its legal obligations under the GDPR and the Data Protection Act 2018. ELAROS is a ‘data processor’ in respect of C19-YRS, which means that we only process personal data as instructed by our customers, i.e. the clinical bodies that provide you with care and treatment.
2. Who are ELAROS
ELAROS 24/7 Limited (ELAROS) is a company which was incorporated on the 14 December 2010 in England and Wales under No. 07469411 and whose registered office is at Electric Works, Sheffield Digital Campus, Sheffield, S1 2BJ. The business of ELAROS is the development of health technologies, health apps, clinical web portals and clinical assessment tools.
3. Contacting ELAROS
You can contact ELAROS by writing to us at the above address, or by emailing us at email@example.com or by calling us on 0114 286 6200.
4. Who is responsible for the management of data protection at ELAROS?
ELAROS hosts its C19-YRS app and cloud-based software through a third-party hosting provider, Pipe and Piper (https://pipeandpiper.co.uk). For more information on Pipe and Piper’s storage policies for data collected on C19-YRS, visit https://pipeandpiper.co.uk/policies/
5. What sort of personal data do we hold and collect?
The C19-YRS system needs to process your name and other contact details so that those who are treating you know who you are. These include:
Name (First Name and Last Name)
Date of Birth
Medical centre being seen at
City, town, borough or district you have been referred from
Sex at birth
Email address (optional)
Your primary language
The system will also collect and process data about your health, relevant medical history and symptoms if unwell, in particular information about symptoms relating to short and long-term COVID. We process this sensitive data so that the clinical teams using the system can access up-to-date information to help treat you.
Some additional information may be requested, but providing this information is optional:
Information about your health status (including height and weight)
Information about your medical history/pre-existing conditions
Your COVID-19 test data (date, type and result)
Number of days in hospital and intensive care due to COVID-19 care data
Racial or ethnic origin data
Any medication you take and what for
The C19-YRS questionnaire may also ask questions on other sensitive topics, such as:
Thoughts of self-harm (Depression)
Unpleasant dreams (PTSD screening)
General thoughts and feelings from family members
Whether you care for another individual (social role)
Weight loss and nutritional health (optional)
Employment status (optional)
6. Who is your data shared with?
To deliver the care and treatment that you need, ELAROS requires the support of another company called Pipe and Piper Ltd. Pipe and Piper are a UK-based software development company composed of app developers, cloud software engineers, web designers and business experts, focused on delivering bespoke digital app and cloud software solutions. Pipe and Piper Ltd host the system on our behalf but are not permitted to process the data collected within it other than as instructed by our clinical customers. For more information on Pipe and Piper’s storage policies for data collected on C19-YRS, visit https://pipeandpiper.co.uk/policies/
ELAROS only acts upon the instructions of our customers and data will only be shared with other bodies with their authorisation (unless exceptional circumstances apply and we are required to share data by law).
7. Will my data be used to support research?
The clinical bodies that are providing you with care may elect to support non-commercial research into Long COVID and the system provided by ELAROS can support this if we are instructed to do so by our customers. Where this is the case, these clinical bodies will have data sharing agreements with its research partners. Possible reasons for supporting research include:
To better understand the symptoms of Long COVID
To advance the scientific research on Long COVID and its treatment pathways
To support the ongoing demographic research surrounding Long COVID- exploring the impact of, for example, ethnic origin or smoker status
Prior to instructing ELAROS to provide data about you to a University or other non-commercial organisations interested in health research, our clinical customers will seek your consent and capture your response within the C19-YRS system. None of your data can lawfully be shared by ELAROS with any organisation(s) other than the clinical bodies that are providing you with care if you do not consent and in any case no data will be shared in a form that can identify who you are.
This app is solely for our customers’ purposes, so we will never share your personal or sensitive personal data with any third party for marketing or commercial purposes.
9. What are your data protection rights?
You have a number of rights under data protection law, including the right to see what data is held about you, have it corrected if it is inaccurate and even to have data removed from the system in some circumstances. If you wish to understand more about your rights or to exert them you must contact the body providing you with care as ELAROS can only act when instructed by them We will of course do all we can to assist them if they so request.
10. How to contact us
If you have any questions about ELAROS or the system we provide please do not hesitate to contact us on email: firstname.lastname@example.org or call us at: 0114 286 6200. Alternatively, write to us at: Electric Works, Sheffield Digital Campus, Sheffield, S1 2BJ
11. Contacting the regulator to make a complaint
Data subjects have the right to make a complaint at any time to the Information Commissioner’s Office (ICO), the UK supervisory authority in relation to data protection issues (www.ico.org.uk). If a data subject feels that their data has not been handled correctly, or is unhappy with our response to any requests that they have made to us regarding our use of their personal data, they have the right to lodge a complaint with the Information Commissioner’s Office. We would, however, appreciate the chance to deal with any such concerns before you approach the ICO so please contact us in the first instance.
The ICO can be contacted by calling 0303 123 1113 or by going online at www.ico.org.uk/concerns.